I’ve said all along that I feel exactly the same without a thyroid as I felt with one, but that’s not exactly true. One of the side affects I had been warned about was sensitivity to cold, and I’m definitely feeling that. It’s now November and the temperature drops into the 40s at night and we’ve had a few days where it barely cracks 60. I’m cold all the time. I am going to need to crack open the LL Bean catalogue and get some winter wear.
Oh well, if this is my biggest problem, I can handle it.
I haven’t posted anything in a while, which is good. There’s been nothing to post.
Had my follow-up with Dr. Q a couple weeks ago and he confirmed what I learned from the scan. No sign of any spread of the cancer. All I’m doing now is waiting. I’ll have an ultrasound in about 5 months and another WBS in 11 months. In the meantime, my treatment is over.
Dr. Q upped my dose of Levothyroxin from 150 to 175, but I don’t really feel any different. My skin is a little less dry, but that’s it. Haven’t had any real fatigue that you’d associate with hypo the whole time.
So that’s it. Pretty much back to my normal life. Waiting to see that I’m in the clear.
I’ve been feeling pretty good so far (now on Day 9 without my hormones) so I’ve been doing everything as I would normally. Business as usual. However, the more I read on the message boards, I’ve become convinced that I should not be driving, so I won’t.
Fact is: I am hypothyroid, even I don’t feel hypothyroid. Stuff is happening to me that I’m not even aware of. One of those things is that my reaction time is slowing down. At least, that’s what I read. Seems fine to me. But I have read enough stories on the thyroid cancer message board of people who also felt perfectly normal, then one day they were driving and realized that there was this strange gap between the moment they recognized the red light and the moment their foot hit the brake.
I’d rather that not be me, thank you very much, so I’m putting away the keys.
Got through the first weekend of the LID, and so far I have to say it’s going pretty well. I haven’t felt hungry or deprived or like I’m eating things that don’t taste good. It’s just … a … lot … of … work. I don’t know how you could do this if you had a job. I know you are supposed to prepare a lot of stuff in advance in freeze it, but that takes time, too.
I’ve got to give my wife a shout-out here. I really could not be doing this without her. At the moment neither one of us is working, so it seems like we spend all day prepping, baking, loading the dishwasher, emptying it, etc. Most days we cook or bake just one new thing, so it’s manageable, but today was a little crazy.
First thing was to bake some more bread. We have borrowed a bread-maker, but the bread comes out better when we use a different recipe. This morning she made the dough, kneaded it, then let it sit for an hour or so, then split it between two pans, then let it sit some more, then put it in the oven. But, oops, she forgot to change the temperature of the oven like the recipe says, so the bread was ruined. Then we made meatballs and burger patties out of the big batch of ground turkey we bought on Wednesday. Then we made pasta sauce. Then we made vinaigrette. The latter two don’t take very long, but still, you go through a lot of dishes that require cleaning. Then, we made the bread again. (Check here to see what I ate today, out of all that.)
That’s a full day. Ran the dishwasher three times and still have dishes left in the sink for tomorrow.
I’ve finished Day 1 of the low-iodine diet, and I survived. Wasn’t even that terrible. Sure, there’s a lot of labor involved and it’s a little pricey to get all this natural food but I think it’ll be OK.
I was planning to put all of what I ate in the blog, as a service to other thyroid cancer patients, but I decided instead to just keep it all on a separate page: Jeff’s LID log. Catchy name, huh? It’s linked at the right, so you can always come back and find it.
Meanwhile, I’ll keep the blog focused on some general LID-related issues, as well as how I’m doing sans-hormones.
It took longer than I would have liked to get my RAI on the calendar, because of some scheduling issues at the Nuclear Medicine Department — Nuclear Medicine … sounds cool — but finally I know what’s happening when.
On May 2, I will go in to have a tracer dose of the radioactive iodine. That’ll be used for a scan the next day, so they’ll look for something and determine what dosage I need of the real thing. I assume they see how much of my old thyroid gland is still in there. So on May 3, they’ll give me that pill, and then I’ll go home and begin my quarantine, which will last a week to 10 days.
I’m actually sort of looking forward to it. As I understand it, the only side-effects that I may feel are a little nausea or possibly a dry mouth. But it’s possible I won’t have any of that. I could feel perfectly normal the whole time. I’ll just be hanging out in our guest room watching baseball, watching movies, reading, playing online poker. (My iPad is scheduled to arrive April 30!) I’ll still be able to see my family and talk to them, as long as they stay in the doorway and don’t come in. But I won’t have to get anyone ready for school or empty the diswasher or take out the trash or do anything.
I’m just gonna sit and glow.
Today’s issue is trying to figure out how I’m going to take all these pills at the right times. There aren’t enough hours in the day.
So I’m supposed to take the Cytomel as close to 12 hours apart as possible. Also supposed to take it on an empty stomach both times. Also not supposed to take it within four hours of taking the Calcium, which I am supposed to take three times a day (for now).
I’m actually not sure about the Cytomel. There is a lot of different info out there. Some people take it without food. Some take it with food. I think you just have to figure whichever works best for you and then do it the same all the time. I’ve also read that the Cytomel makes it hard to sleep, so you shouldn’t take it at night.
It’s all very confusing. Hopefully I’ll be reducing (or eliminating) the Calcium soon, so that’ll make it easier.